Cystic Fibrosis Victoria (CFV) was founded in 1974 by a group of parents of children with cystic fibrosis and became an Incorporated Association in 1984. CFNSW was founded in 1967 by a group of parents and clinicians to help support children and families living with CF.
In 2017 CFV became known as Cystic Fibrosis Community Care as we believe this more accurately reflects our fundamental role, caring for our community. Shortly after our name change, Cystic Fibrosis NSW merged with CF Community Care to become one organisation that represents the interests of people living with CF and the CF community across Australia’s two largest states by population.
In the public sphere, CF Community Care is recognised as a public benevolent institution and is governed by a board of directors composed of representatives of people from the CF community and others with particular expertise in advancing our mission and vision of ‘lives unaffected by CF’.
We provide advocacy, support and information services to people living with CF and their families. We also conduct awareness programs for the general public and fundraise to support service provision to families and adults living with CF, and to promote CF research.
As a not-for-profit charitable organisation CF Community Care relies heavily upon the generosity of the Victorian and NSW public as well as private donors and philanthropic sources. Only 20% of our income is provided by various levels of government.
Our key focus areas
Programs & services
Providing support programs and services that help to enhance the quality of life and meet the needs of over 1,000 members
Promoting and facilitating research into improved treatments and therapies for people with cystic fibrosis, and fundraising to support the Australian Cystic Fibrosis Research Trust
National unity & collaboration
Participating in cooperative initiatives between CF organisations across Australia
Public awareness & communications
Maintaining and improving relations and communications with members, the wider CF community, and other key stakeholders
Information, education & advocacy
Delivering information and education services to key stakeholders, and representing individuals and groups on issues that require government or institutional action
A commitment to generating a regular stream of income to meet program delivery objectives, support research initiatives and remain financially viable in the future
Governance & transparency
Providing balanced, transparent and proactive governance and delivery of positive program outcomes through a highly productive workforce.ml